Siena's HUGS was founded by Andrew & Jamie Schoenberger in 2011 after their daughter, Siena, was diagnosed with Prader-Willi Syndrome. Prader-Willi Syndrome (PWS) is a complex and rare genetic disorder that occurs in approximately one out of every 15,000 births. PWS affects males and females with equal frequency and affects all races and ethnicities. PWS is caused by abnormality of chromosome 15 and is recognized as the most common genetic cause of life-threatening childhood obesity. For more information about PWS, please see our Informational Links page.
Siena's HUGS is working to develop special programs for physical activity, artistic and musical expression and healthy living workshops. It is our dream to one day open a facility where all of these programs can operate under one roof. Volunteers and donations are always welcome and will help us make this dream come true!
The road is not always easy, but together we will be stronger in our journey. Siena’s HUG believes that our special needs children have a unique difference... to not focus on what they can't do but what they can do and to help with their physiological and the psychological security towards a long, happy and healthy life.